Taoiseach intervenes to secure treatment plan for two-year-old from Knockbridge
Taoiseach Leo Varadkar has weighed in to try and help a local two-year-old child receive proper care for his scoliosis.
According to a report in the Irish Daily Mirror, the Taoiseach’s office contacted Crumlin Children’s Hospital in Dublin late last week requesting a copy of Knockbridge boy Noah Doyle’s case file.
Little Noah is awaiting an MRI scan to find out how extensive the damage to his spine in. It is crucial to discover if he will be ever able to walk.
Noah’s dad Adam revealed that the two year-old will have his case reviewed by top paediatric surgeons at a conference this week but said that his son still has no date set for his MRI scan.
Noah was diagnosed with scoliosis on the day he was born, but waiting lists for the scan mean his treatment has been delayed.
Adam Doyle fears his son will never have any quality of life after waiting lists caused his condition to deteriorate.
Noah was finally seen by a consultant on June 28th last, 890 days after first being diagnosed with scoliosis and it was revealed that his back has become fused together.
“We knew from the start that Noah will never live a normal life, he’ll never go to a normal school, never fall in love, have kids or a family of his own,” dad Adam told the Pat Kenny show.
He added that he and his wife Rosemarie had “made peace” with the life Noah will have, but this new information has threatened to shatter any dreams the couple may have for their son.
“You then dream about things. Noah loves being outside so you think ‘right, we’ll go for a walk in the forest. We’ll go for a walk on the beach. We’ll build a life that he’ll be happy, because that’s what’s important’. Now suddenly that’s gone.”
Adam believes that with proper intervention Noah’s condition wouldn’t have been as bad. Now, Noah faces painful surgeries that could cost millions of euro.
The two-year-old also faces more extreme surgery if he hopes to regain any movement in his back.
“They are going to go in with a grinder and saw and cut away sections of his spine,” said Adam.
Noah is waiting to be put on a waiting list for treatment at Our Lady’s Children’s Hospital, Crumlin. According to Adam it is the “only show in town for Noah” as his heart complications require special treatment especially when it comes to being sedated.
It is understood the Taoiseach got involved last week with Our Lady’s Children’s Hospital subsequently issuing a statement to The Irish Independent saying that they are developing a treatment plan for Noah.
“Noah Doyle was on the OLCHC Orthopaedic Outpatient Waiting List for scoliosis review and was seen recently by an Orthopaedic Consultant Surgeon.
“Following this recent review the Consultant Orthopaedic Surgeon is developing a scoliosis plan of care for Noah’s treatment at OLCHC. To facilitate this Noah will require full clinical assessment at OLCHC.
“As part of this assessment Noah Doyle’s case will be one of the patient cases that will be discussed at a planned multidisciplinary team meeting which will include orthopaedic surgeons from OLCHC and experts from a National UK Orthopaedic Centre as part of the overall HSE Scoliosis Action Plan 2017. This multidisciplinary meeting will take place at OLCHC next week.
“OLCHC awaits the outcome of this multidisciplinary team meeting to progress Noah’s treatment plan and will revert to the family directly.”
Adam told The Irish Daily Mirror that he just wanted the best for his son.
“All I care about is getting Noah the treatment he needs, we’ve been jumping through hoops for more than two years,” he said.
Pictured above: Adam and Noah Doyle